Get involved in research
Survivors of stroke, families, carers and the community are central to stroke research. You can:
- help direct research as part of the project team
- share your views and experience
- test new treatments to find out what works.
Getting involved in research may sometimes also allow you to access emerging therapy you wouldn’t otherwise be able to get. Involvement may also be part of your stroke recovery plan.
Stroke Foundation has an e-learning module to help you work well with stroke researchers.
-
Stroke Foundation is proud to partner with Join Us.
Sign up to be notified of health research that matches your interests, and help us continue our work.
Stroke risk and causes in young adults
Researchers at University of Waterloo in Canada are conducting a study on strokes in young adults, to better understand stroke risk factors and improve prevention strategies. You are invited to take a 10–15 minute online survey about various risk factors that may be associated with strokes in young adults.
Communication partner training for healthcare staff
People with aphasia need support with their communication so that they can engage in healthcare and receive care that meets their needs. It is important that healthcare professionals, including doctors, nurses and allied health, are trained in supporting communication with people with aphasia. Researchers from the University of Queensland want to develop an implementation package to support Communication Partner Training of healthcare staff working in stroke settings. Health professionals who provide healthcare services to people with aphasia after stroke are invited to take a 15-minute online survey about Communication Partner Training barriers and training needs.
Improving mobile health (mHealth) apps
This Monash University study is exploring user preferences for the design of adaptive user interfaces in mHealth (mobile health) applications, particularly for people managing chronic conditions. ‘Adaptive user interfaces’ are software applications where some aspects of the interface are modified to cater for different user needs and preferences, e.g. font or button size, colour, layout, complexity, or interaction style. People with experience of using mHealth applications to manage or prevent chronic disease conditions are invited to complete a 10–15 minute online survey.
A co-design approach to psychoeducation
Mental health and cognitive difficulties are common after stroke but often overlooked. Researchers from Macquarie University want to create an educational resource providing information and strategies to help manage these potential changes. People with lived experience of stroke, either as a survivor or a family member or carer, are invited to take part in an online focus group to share their opinion of what should be included.
Post-stroke vision care services
Researchers at La Trobe University are exploring the vision care services provided to survivors of stroke in Australia. By understanding your experiences, they aim to gain insights that can help improve the quality of these services. People with lived experience of stroke, either as a survivor or a family member or carer, are invited to taka a 15-minute, anonymous online survey.
Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences and opinions in a focus group. The workshop will be held at the Hunter Medical Research Institute (HMRI) in Newcastle NSW, or via an online platform, in late November 2024.
Re-designing allied health stroke assessment - what do you think?
This study from the Mater Research Institute, University of Queensland aims to combine allied health assessments into a single form that one be completed by one professional. The research team seek to understand perspectives of people with lived experience of stroke, transient ischemic attack (TIA), and their carers about this new assessment method. Participants will be asked to complete 2 online surveys of 60–90 minutes each. The surveys will require participants to watch a video, read information, and write written responses to questions. No prior training or preparation is required.
Digital solutions to improve health self-efficacy after stroke
Researchers from Flinders University are looking for stroke survivors and carers to help test a website that has been designed to help people feel confident in their ability to achieve the things that are important to them. You would be asked to take part in a “take charge” online Zoom session to discuss your goals, use the website as much or as little as you would like to for four weeks, and complete an interview and four questionnaires at different stages.
Lived experience partner: Music-based virtual reality upper limb stroke rehabilitation
Researchers from Flinders University and UniSA are co-designing an upper limb rehabilitation program in virtual reality to improve the quality of life for survivors of stroke. The project will test if combining music and virtual reality can improve recovery outcomes. People with lived experience of upper limb impairment are invited to join to project to provide feedback about study design (non-technical), share what is reasonable to request/expect from a survivor of stroke participant, and how to most appropriately communicate/provide information to participants. The role involves providing feedback by email and in project meetings every 1 to 2 months, until the end of the pilot trial (30 October 2024). Lived-experience partners may opt to stay involved for the duration or part of this time.
Acceptance, coping and wellbeing with neurocognitive impairment
Researchers from Cairnmillar Institute are studying how people with neurocognitive impairment (NCI) cope with their challenges. They are particularly interested in the role of acceptance and styles of coping, and how people with NCI handle stress and changes. Survivors of stroke will be interviewed either in-person at the Cairnmillar Institute in Hawthorn East, Victoria, or via video call. Family members or carers will also be asked to complete a short online survey.
Mind-body therapies for ongoing pain following stroke
Ongoing pain after stroke can be challenging, with limited available or effective treatments. For some people with pain, mind-body therapies (such as relaxation, yoga, mindfulness, meditation, hypnosis) can be useful, but not enough is known about these therapies for people with pain after stroke. Researchers from The University of Adelaide want to know about your experience of pain after stroke and your thoughts and/or experiences of mind-body therapies. Participation involves an approximately one-hour interview online via Zoom or in-person at the University of Adelaide (North Terrace Campus) at a time convenient for you.
Psychoeducation package for young survivors of stroke
Researchers from La Trobe University are co-designing an accessible, inclusive package of clinician-delivered education and other resources with information about the ‘invisible’ challenges experienced by young adult survivors of stroke, including mental health, fatigue and cognitive challenges. Young survivors of stroke who had their stroke at age 18–45 years old and their support people are invited to take part in two 90-minute focus groups over Zoom to contribute perspectives on the content and delivery of the psychoeducation package.
Health professionals: Help create a psychoeducation package for young survivors of stroke
Researchers from La Trobe University are co-designing an accessible, inclusive package of clinician-delivered education and other resources with information about the ‘invisible’ challenges experienced by young adult survivors of stroke. Health professionals with at least 5 years of experience working with young survivors of stroke (aged between 18–45 years) with cognitive/psychosocial difficulties are invited to take part in two 90-minute focus groups over Zoom to contribute perspectives on the content and delivery of the psychoeducation package.
Researchers from Edith Cowan University would like to hear from survivors of stroke, family members and carers about diet, lifestyle and mental health, to better understand how to improve support. Participation involves an online survey that will take about 15–30 minutes, and a 1–2 hour group meeting either online, or in person at ECU (Joondalup) or Royal Perth Hospital (Perth CBD).
This project is being led by Ellis Blyth, a trainee clinical psychologist at the University of East Anglia, as part of a doctorate thesis. Survivors of stroke interested in participating in research looking at anxiety and depression after stroke are invited to take an online anonymous survey.
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
Environmental enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors (age 18-65). The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
Researchers from La Trobe University are looking for people with aphasia to trial an online aphasia therapy called M-MAT Tele.
M-MAT Tele is a group therapy that aims to improve talking for people with aphasia.
A speech pathologist provides therapy to a group of three (3) people with aphasia.
You can take part if you have aphasia and can start therapy 3–12 months after your stroke.
You would receive thirty (30) hours of online therapy.
Therapy would be two hours per day, three days each week over five weeks.
Co-designing a multicultural digital stroke education program
University of Wollongong is conducting a research project called "Diverse Hearts – Co-designing a culturally tailored, evidence-based, digital education program to reduce stroke risk factors and promote mental well-being for people from culturally and linguistically diverse (CALD) communities." They are seeking people from Arabic, Dari, Chinese and Vietnamese-speaking communities who have high blood pressure, cholesterol, diabetes, or are a stroke survivor. They are also looking to speak to health professionals and people from non-government organisations who work with people from multicultural communities. Participation will involve interviews or focus group discussions, followed by reviews of the digital education modules.
Fatigue-o-meter: A tool for post-stroke fatigue
If you have fatigue after stroke, or you support someone living with post-stroke fatigue, you might be interested in this study from the University of Newcastle. The research team have now co-designed an educational tool with survivors of stroke, their support crew and with health professionals. They will be testing the tool as a treatment, guided by a health professional in 2024.
Understanding the impact of Stroke on family - Surviving and Thriving AfteR Stroke (STARS)
The STARS team at the University of Technology Sydney want to understand the impact of stroke on families. We also want to identify current practices stroke clinicians use to support families where a parent has a stroke, gaps, barriers and facilitators to providing optimal care. We want to interview all family members where a parent has had a stroke, including parents, co-parents and children (3–18 years old). Families can live anywhere in Australia. We can interview families online and where possible, in person. Stroke clinicians can also join focus groups or interviews to share their experiences of providing services to families where a parent has had a stroke.
Dysphagia telerehabilitation program for stroke survivors living in the community
This research study from the University of Sydney is about swallowing therapy via telehealth. Taking part in this study is voluntary. The research team are inviting people who had a stroke more than 6 months ago and have swallowing difficulties to participate.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
Stroke risk and causes in young adults
Researchers at University of Waterloo in Canada are conducting a study on strokes in young adults, to better understand stroke risk factors and improve prevention strategies. You are invited to take a 10–15 minute online survey about various risk factors that may be associated with strokes in young adults.
Communication partner training for healthcare staff
People with aphasia need support with their communication so that they can engage in healthcare and receive care that meets their needs. It is important that healthcare professionals, including doctors, nurses and allied health, are trained in supporting communication with people with aphasia. Researchers from the University of Queensland want to develop an implementation package to support Communication Partner Training of healthcare staff working in stroke settings. Health professionals who provide healthcare services to people with aphasia after stroke are invited to take a 15-minute online survey about Communication Partner Training barriers and training needs.
Improving mobile health (mHealth) apps
This Monash University study is exploring user preferences for the design of adaptive user interfaces in mHealth (mobile health) applications, particularly for people managing chronic conditions. ‘Adaptive user interfaces’ are software applications where some aspects of the interface are modified to cater for different user needs and preferences, e.g. font or button size, colour, layout, complexity, or interaction style. People with experience of using mHealth applications to manage or prevent chronic disease conditions are invited to complete a 10–15 minute online survey.
A co-design approach to psychoeducation
Mental health and cognitive difficulties are common after stroke but often overlooked. Researchers from Macquarie University want to create an educational resource providing information and strategies to help manage these potential changes. People with lived experience of stroke, either as a survivor or a family member or carer, are invited to take part in an online focus group to share their opinion of what should be included.
Post-stroke vision care services
Researchers at La Trobe University are exploring the vision care services provided to survivors of stroke in Australia. By understanding your experiences, they aim to gain insights that can help improve the quality of these services. People with lived experience of stroke, either as a survivor or a family member or carer, are invited to taka a 15-minute, anonymous online survey.
Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences and opinions in a focus group. The workshop will be held at the Hunter Medical Research Institute (HMRI) in Newcastle NSW, or via an online platform, in late November 2024.
Re-designing allied health stroke assessment - what do you think?
This study from the Mater Research Institute, University of Queensland aims to combine allied health assessments into a single form that one be completed by one professional. The research team seek to understand perspectives of people with lived experience of stroke, transient ischemic attack (TIA), and their carers about this new assessment method. Participants will be asked to complete 2 online surveys of 60–90 minutes each. The surveys will require participants to watch a video, read information, and write written responses to questions. No prior training or preparation is required.
Digital solutions to improve health self-efficacy after stroke
Researchers from Flinders University are looking for stroke survivors and carers to help test a website that has been designed to help people feel confident in their ability to achieve the things that are important to them. You would be asked to take part in a “take charge” online Zoom session to discuss your goals, use the website as much or as little as you would like to for four weeks, and complete an interview and four questionnaires at different stages.
Lived experience partner: Music-based virtual reality upper limb stroke rehabilitation
Researchers from Flinders University and UniSA are co-designing an upper limb rehabilitation program in virtual reality to improve the quality of life for survivors of stroke. The project will test if combining music and virtual reality can improve recovery outcomes. People with lived experience of upper limb impairment are invited to join to project to provide feedback about study design (non-technical), share what is reasonable to request/expect from a survivor of stroke participant, and how to most appropriately communicate/provide information to participants. The role involves providing feedback by email and in project meetings every 1 to 2 months, until the end of the pilot trial (30 October 2024). Lived-experience partners may opt to stay involved for the duration or part of this time.
Acceptance, coping and wellbeing with neurocognitive impairment
Researchers from Cairnmillar Institute are studying how people with neurocognitive impairment (NCI) cope with their challenges. They are particularly interested in the role of acceptance and styles of coping, and how people with NCI handle stress and changes. Survivors of stroke will be interviewed either in-person at the Cairnmillar Institute in Hawthorn East, Victoria, or via video call. Family members or carers will also be asked to complete a short online survey.
Mind-body therapies for ongoing pain following stroke
Ongoing pain after stroke can be challenging, with limited available or effective treatments. For some people with pain, mind-body therapies (such as relaxation, yoga, mindfulness, meditation, hypnosis) can be useful, but not enough is known about these therapies for people with pain after stroke. Researchers from The University of Adelaide want to know about your experience of pain after stroke and your thoughts and/or experiences of mind-body therapies. Participation involves an approximately one-hour interview online via Zoom or in-person at the University of Adelaide (North Terrace Campus) at a time convenient for you.
Psychoeducation package for young survivors of stroke
Researchers from La Trobe University are co-designing an accessible, inclusive package of clinician-delivered education and other resources with information about the ‘invisible’ challenges experienced by young adult survivors of stroke, including mental health, fatigue and cognitive challenges. Young survivors of stroke who had their stroke at age 18–45 years old and their support people are invited to take part in two 90-minute focus groups over Zoom to contribute perspectives on the content and delivery of the psychoeducation package.
Health professionals: Help create a psychoeducation package for young survivors of stroke
Researchers from La Trobe University are co-designing an accessible, inclusive package of clinician-delivered education and other resources with information about the ‘invisible’ challenges experienced by young adult survivors of stroke. Health professionals with at least 5 years of experience working with young survivors of stroke (aged between 18–45 years) with cognitive/psychosocial difficulties are invited to take part in two 90-minute focus groups over Zoom to contribute perspectives on the content and delivery of the psychoeducation package.
Researchers from Edith Cowan University would like to hear from survivors of stroke, family members and carers about diet, lifestyle and mental health, to better understand how to improve support. Participation involves an online survey that will take about 15–30 minutes, and a 1–2 hour group meeting either online, or in person at ECU (Joondalup) or Royal Perth Hospital (Perth CBD).
This project is being led by Ellis Blyth, a trainee clinical psychologist at the University of East Anglia, as part of a doctorate thesis. Survivors of stroke interested in participating in research looking at anxiety and depression after stroke are invited to take an online anonymous survey.
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
Environmental enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors (age 18-65). The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
Researchers from La Trobe University are looking for people with aphasia to trial an online aphasia therapy called M-MAT Tele.
M-MAT Tele is a group therapy that aims to improve talking for people with aphasia.
A speech pathologist provides therapy to a group of three (3) people with aphasia.
You can take part if you have aphasia and can start therapy 3–12 months after your stroke.
You would receive thirty (30) hours of online therapy.
Therapy would be two hours per day, three days each week over five weeks.
Co-designing a multicultural digital stroke education program
University of Wollongong is conducting a research project called "Diverse Hearts – Co-designing a culturally tailored, evidence-based, digital education program to reduce stroke risk factors and promote mental well-being for people from culturally and linguistically diverse (CALD) communities." They are seeking people from Arabic, Dari, Chinese and Vietnamese-speaking communities who have high blood pressure, cholesterol, diabetes, or are a stroke survivor. They are also looking to speak to health professionals and people from non-government organisations who work with people from multicultural communities. Participation will involve interviews or focus group discussions, followed by reviews of the digital education modules.
Fatigue-o-meter: A tool for post-stroke fatigue
If you have fatigue after stroke, or you support someone living with post-stroke fatigue, you might be interested in this study from the University of Newcastle. The research team have now co-designed an educational tool with survivors of stroke, their support crew and with health professionals. They will be testing the tool as a treatment, guided by a health professional in 2024.
Understanding the impact of Stroke on family - Surviving and Thriving AfteR Stroke (STARS)
The STARS team at the University of Technology Sydney want to understand the impact of stroke on families. We also want to identify current practices stroke clinicians use to support families where a parent has a stroke, gaps, barriers and facilitators to providing optimal care. We want to interview all family members where a parent has had a stroke, including parents, co-parents and children (3–18 years old). Families can live anywhere in Australia. We can interview families online and where possible, in person. Stroke clinicians can also join focus groups or interviews to share their experiences of providing services to families where a parent has had a stroke.
Dysphagia telerehabilitation program for stroke survivors living in the community
This research study from the University of Sydney is about swallowing therapy via telehealth. Taking part in this study is voluntary. The research team are inviting people who had a stroke more than 6 months ago and have swallowing difficulties to participate.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
There are currently no research projects listed for the Australian Capital Territory. Please check the National tab for projects recruiting Australia-wide.
There are currently no research projects listed for the Australian Capital Territory. Please check the National tab for projects recruiting Australia-wide.
Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences and opinions in a focus group. The workshop will be held at the Hunter Medical Research Institute (HMRI) in Newcastle NSW, or via an online platform, in late November 2024.
Researchers from University of New South Wales are conducting the first Australian cohort study of CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, a rare hereditary form of stroke). They are interested in how CADASIL presents and progresses including in the brain (MRI and tasks of thinking and memory), blood and eye. People with diagnosed CADASIL, CADASIL symptoms or a family history of CADASIL, people without CADASIL, and family members are invited to attend a our study sites for questionnaires and assessment. Study sites are located at Sydney (Randwick), Newcastle, Melbourne and Brisbane.
The Allen Study: exploring stroke survivors' lived experiences
The Allen Study from the University of Technology Sydney explores the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People who have had a stroke in the past are invited to complete a 30-minute, online baseline survey annually from 2024 until 2031 (or for the duration of the participant's involvement in the study).
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Researchers from the University of Newcastle are conducting the FoCCuS4HEART project, which seeks to work with informal female carers of stroke survivors to develop strategies and tools to support carers to self-manage their emotional and physical health. If you’re a woman who provides care or has provided care to someone who has had a stroke, you can help by sharing your experiences and opinions in a focus group. The workshop will be held at the Hunter Medical Research Institute (HMRI) in Newcastle NSW, or via an online platform, in late November 2024.
Researchers from University of New South Wales are conducting the first Australian cohort study of CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, a rare hereditary form of stroke). They are interested in how CADASIL presents and progresses including in the brain (MRI and tasks of thinking and memory), blood and eye. People with diagnosed CADASIL, CADASIL symptoms or a family history of CADASIL, people without CADASIL, and family members are invited to attend a our study sites for questionnaires and assessment. Study sites are located at Sydney (Randwick), Newcastle, Melbourne and Brisbane.
The Allen Study: exploring stroke survivors' lived experiences
The Allen Study from the University of Technology Sydney explores the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People who have had a stroke in the past are invited to complete a 30-minute, online baseline survey annually from 2024 until 2031 (or for the duration of the participant's involvement in the study).
Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners for a study exploring the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke. People with lived experience of stroke as a survivor, carer or family member are invited to attend 2–3 meetings per year and provide input, reflection and advice on study design, progress, procedure and decision-making. Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
Outcome prediction in intracerebral haemorrhage study (OPTICS)
The George Institute is currently running a focus group on the potential involvement of machine learning in the decision-making process involved in the prognosis and treatment of intracerebral haemorrhage (ICH) stroke. The focus group will be either in-person or online, and will run for 90 minutes.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.
There are currently no research projects listed for the Northern Territory. Please check the National tab for projects recruiting Australia-wide.
Researchers from University of New South Wales are conducting the first Australian cohort study of CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, a rare hereditary form of stroke). They are interested in how CADASIL presents and progresses including in the brain (MRI and tasks of thinking and memory), blood and eye. People with diagnosed CADASIL, CADASIL symptoms or a family history of CADASIL, people without CADASIL, and family members are invited to attend a our study sites for questionnaires and assessment. Study sites are located at Sydney (Randwick), Newcastle, Melbourne and Brisbane.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
Researchers from University of New South Wales are conducting the first Australian cohort study of CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, a rare hereditary form of stroke). They are interested in how CADASIL presents and progresses including in the brain (MRI and tasks of thinking and memory), blood and eye. People with diagnosed CADASIL, CADASIL symptoms or a family history of CADASIL, people without CADASIL, and family members are invited to attend a our study sites for questionnaires and assessment. Study sites are located at Sydney (Randwick), Newcastle, Melbourne and Brisbane.
Aphasia and using the Internet
A team at the Queensland Aphasia Research Centre are co-designing software to help people with aphasia to use the Internet. Family members or carers of people with post-stroke aphasia can take part in this phase of the project. This involves a 3-hour focus group (online or in-person at The University of Queensland, Herston) to share your experiences of supporting a loved one with aphasia to use the Internet.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
Music-based virtual reality upper limb stroke rehabilitation (pilot trial)
Researchers from Flinders University and UniSA are developing an upper limb rehabilitation program in virtual reality to improve the quality of life for survivors of stroke. They are testing if combining music and virtual reality can improve recovery outcomes. You will be one of the first people to formally trial this new technology. You will help determine if the therapy improves health aspects including upper limb function, mood and cognition. Participation involves a total of 40 hours of the virtual reality therapy program over 8 weeks, plus wearing a wrist-worn activity monitor and completing assessments and interviews. Participants must be located in (or able to get to) Adelaide, South Australia, to facilitate local assessments and home-based visits from the research team.
Lived experience partner: Music-based virtual reality upper limb stroke rehabilitation
Researchers from Flinders University and UniSA are co-designing an upper limb rehabilitation program in virtual reality to improve the quality of life for survivors of stroke. The project will test if combining music and virtual reality can improve recovery outcomes. People with lived experience of upper limb impairment are invited to join to project to provide feedback about study design (non-technical), share what is reasonable to request/expect from a survivor of stroke participant, and how to most appropriately communicate/provide information to participants. The role involves providing feedback by email and in project meetings every 1 to 2 months, until the end of the pilot trial (30 October 2024). Lived-experience partners may opt to stay involved for the duration or part of this time.
Mind-body therapies for ongoing pain following stroke
Ongoing pain after stroke can be challenging, with limited available or effective treatments. For some people with pain, mind-body therapies (such as relaxation, yoga, mindfulness, meditation, hypnosis) can be useful, but not enough is known about these therapies for people with pain after stroke. Researchers from The University of Adelaide want to know about your experience of pain after stroke and your thoughts and/or experiences of mind-body therapies. Participation involves an approximately one-hour interview online via Zoom or in-person at the University of Adelaide (North Terrace Campus) at a time convenient for you.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
Can restorative brain-computer interfaces improve hand motor functions after a stroke?
This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Music-based virtual reality upper limb stroke rehabilitation (pilot trial)
Researchers from Flinders University and UniSA are developing an upper limb rehabilitation program in virtual reality to improve the quality of life for survivors of stroke. They are testing if combining music and virtual reality can improve recovery outcomes. You will be one of the first people to formally trial this new technology. You will help determine if the therapy improves health aspects including upper limb function, mood and cognition. Participation involves a total of 40 hours of the virtual reality therapy program over 8 weeks, plus wearing a wrist-worn activity monitor and completing assessments and interviews. Participants must be located in (or able to get to) Adelaide, South Australia, to facilitate local assessments and home-based visits from the research team.
Lived experience partner: Music-based virtual reality upper limb stroke rehabilitation
Researchers from Flinders University and UniSA are co-designing an upper limb rehabilitation program in virtual reality to improve the quality of life for survivors of stroke. The project will test if combining music and virtual reality can improve recovery outcomes. People with lived experience of upper limb impairment are invited to join to project to provide feedback about study design (non-technical), share what is reasonable to request/expect from a survivor of stroke participant, and how to most appropriately communicate/provide information to participants. The role involves providing feedback by email and in project meetings every 1 to 2 months, until the end of the pilot trial (30 October 2024). Lived-experience partners may opt to stay involved for the duration or part of this time.
Mind-body therapies for ongoing pain following stroke
Ongoing pain after stroke can be challenging, with limited available or effective treatments. For some people with pain, mind-body therapies (such as relaxation, yoga, mindfulness, meditation, hypnosis) can be useful, but not enough is known about these therapies for people with pain after stroke. Researchers from The University of Adelaide want to know about your experience of pain after stroke and your thoughts and/or experiences of mind-body therapies. Participation involves an approximately one-hour interview online via Zoom or in-person at the University of Adelaide (North Terrace Campus) at a time convenient for you.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
Can restorative brain-computer interfaces improve hand motor functions after a stroke?
This study is investigating whether neurofeedback training can improve hand movement after stroke. Participation involves attending 20 sessions at the University of Adelaide, during which participants imagine they extend their fingers and receive actual finger extension via a bionic hand involved with their fingers. People who have had a stroke at least 6 months ago, are able to understand auditory commands presented in English, and are independently mobile are invited to take part.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
There are currently no research projects listed for Tasmania. Please check the National tab for projects recruiting Australia-wide.
There are currently no research projects listed for Tasmania. Please check the National tab for projects recruiting Australia-wide.
Researchers from University of New South Wales are conducting the first Australian cohort study of CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, a rare hereditary form of stroke). They are interested in how CADASIL presents and progresses including in the brain (MRI and tasks of thinking and memory), blood and eye. People with diagnosed CADASIL, CADASIL symptoms or a family history of CADASIL, people without CADASIL, and family members are invited to attend a our study sites for questionnaires and assessment. Study sites are located at Sydney (Randwick), Newcastle, Melbourne and Brisbane.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
MedTechVic design sprint invitation for health care professionals
MedTechVic is hosting a series of workshops on behalf of Safer Care Victoria and the Australian Medtech Manufacturing Centre (AMMC), with the aim of engaging stakeholders in creative problem-solving to address complex challenges and ultimately improve health outcomes for all Australians. They are looking for healthcare professionals to draw on their experience of working in the healthcare system, to unpack key issues and ideate potential solutions.
Regular physical activity is important for stroke recovery, reducing chances of another stroke, and keeping you healthy and strong! This phase I/IIA clinical trial from the University of Melbourne aims to find out how long you need to be active for each week and how hard you have to work while active to be beneficial for your health. We are looking for volunteers who are over 18 years old, have had a stroke within the past 6 months, and can walk with or without a gait aid. Health professionals will give you a personalised physical activity program and support you over 6 months. You will be given a Fitbit device to monitor and help support your physical activity.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.
Researchers from University of New South Wales are conducting the first Australian cohort study of CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, a rare hereditary form of stroke). They are interested in how CADASIL presents and progresses including in the brain (MRI and tasks of thinking and memory), blood and eye. People with diagnosed CADASIL, CADASIL symptoms or a family history of CADASIL, people without CADASIL, and family members are invited to attend a our study sites for questionnaires and assessment. Study sites are located at Sydney (Randwick), Newcastle, Melbourne and Brisbane.
Staying connected: using new technologies to personalise stroke recovery
This research project is being led by Professor Leeanne Carey from La Trobe University. It is testing tailored rehabilitation programs, guided by artificial intelligence (AI) and delivered in people's homes, to see whether they improve how well survivors of stroke recover the ability to do everyday activities at home. People who have had a stroke 3–18 months ago and have goals that involve using arms or hands are invited to take part. The study involves a 12-month period, with a clinical assessment at a research centre in Adelaide, Melbourne or Newcastle, and two 6-week therapy blocks delivered remotely.
MedTechVic design sprint invitation for health care professionals
MedTechVic is hosting a series of workshops on behalf of Safer Care Victoria and the Australian Medtech Manufacturing Centre (AMMC), with the aim of engaging stakeholders in creative problem-solving to address complex challenges and ultimately improve health outcomes for all Australians. They are looking for healthcare professionals to draw on their experience of working in the healthcare system, to unpack key issues and ideate potential solutions.
Regular physical activity is important for stroke recovery, reducing chances of another stroke, and keeping you healthy and strong! This phase I/IIA clinical trial from the University of Melbourne aims to find out how long you need to be active for each week and how hard you have to work while active to be beneficial for your health. We are looking for volunteers who are over 18 years old, have had a stroke within the past 6 months, and can walk with or without a gait aid. Health professionals will give you a personalised physical activity program and support you over 6 months. You will be given a Fitbit device to monitor and help support your physical activity.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
We are recruiting people with stroke who would like to participate in a therapy program that focuses on touch sensation and use of the hand. Potential participants should be adults (over 18 years of age) who have had a stroke and have altered feeling in their hand. Participants in the study will be asked to attend assessment and therapy appointments 14 times over a period of six months.
Have you had a stroke or acquired brain injury (ABI) that has affected how you think and feel? Are you interested in learning ways to deal with these changes so you can do more of the things you value in life? Difficulties with memory and other thinking skills, along with changes in mood, can affect the capacity to do things that are meaningful and valued, such as work, leisure and social activities. VaLiANT is an 8-week group program located at La Trobe University in Bundoora (VIC), or run via telehealth (Zoom videoconferencing) during periods of Covid-related restrictions. Adults (aged 18 years or over) who have had a stroke at least 3 months ago can participate. The program is designed to increase your participation in activities that you value while helping you learn strategies for dealing with changes in thinking and mood. You are invited to participate in our research investigating the impact of participating in the group on the lives of people with ABI.
Researchers at Edith Cowan University are studying comprehensive sleep health characterisation in people living with a neurological condition, or people working with people living with a neurological condition. You are invited to complete a demographics questionnaire and 4 questionnaires about aspects of your sleep and sleep environment. You will receive a sleep report based on your questionnaire responses. You may also decide to undertake an objective Sleep and Circadian assessment, which will involve wearing a device that measures your sleep.
Researchers from Edith Cowan University would like to hear from survivors of stroke, family members and carers about diet, lifestyle and mental health, to better understand how to improve support. Participation involves an online survey that will take about 15–30 minutes, and a 1–2 hour group meeting either online, or in person at ECU (Joondalup) or Royal Perth Hospital (Perth CBD).
Environment enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors. The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
The relationship between thinking skills and daily functioning in adults with brain injuries
The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.
Researchers at Edith Cowan University are studying comprehensive sleep health characterisation in people living with a neurological condition, or people working with people living with a neurological condition. You are invited to complete a demographics questionnaire and 4 questionnaires about aspects of your sleep and sleep environment. You will receive a sleep report based on your questionnaire responses. You may also decide to undertake an objective Sleep and Circadian assessment, which will involve wearing a device that measures your sleep.
Researchers from Edith Cowan University would like to hear from survivors of stroke, family members and carers about diet, lifestyle and mental health, to better understand how to improve support. Participation involves an online survey that will take about 15–30 minutes, and a 1–2 hour group meeting either online, or in person at ECU (Joondalup) or Royal Perth Hospital (Perth CBD).
Environment enrichment for young stroke survivors
Cognitive problems are common in young stroke survivors and negatively impact quality of life. Researchers from Edith Cowan University are evaluating the benefits of a 12-week lifestyle program for young stroke survivors. The program includes physical activity, cognitive training and guidance on healthy eating and sleep. The program can be delivered remotely for people around Australia, including regional and remote areas.
UPLIFT trial: Integrated UPper limb and Language Impairment and Functional Training after stroke
Do you have difficulty using your arm and communicating after your stroke? The UPLIFT trial is recruiting people who are 3 to 24 months post-stroke and living in the community to test a new intensive rehabilitation program that trains arm movement and communication together. Depending on the amount of function you have, the program will be provided at home via telerehabilitation, or in person at a health clinic.
The relationship between thinking skills and daily functioning in adults with brain injuries
The University of Western Australia is researching how thinking skills following a brain injury like stroke affect how well people can do things such as work or hobbies. Participants will need to attend the University of Western Australia in Perth to have an assessment and complete questionnaires and tests, and attend a follow-up in three months’ time. Case managers or partners will also be invited to participate. A report about how participants went can be provided on request.
Duty of care and responsibility
- Stroke Foundation endeavours to ensure that all engagement through our research program is undertaken ethically and in line with our guiding principles. Reasonable checks are undertaken to ensure promoted projects have appropriate approval from a recognised body.
- Stroke Foundation is not responsible for externally administered research and is not liable for any claims concerning negligence, harm or oversight that might arise during the course of the research.
- Consent to take part and any questions or concerns regarding the research should be initially directed to the research team contacts provided.
- Stroke Foundation retains the right to remove listings/postings that do not meet the requisite criteria, and/or if complaints are received concerning the research project.
Do you have a research project? Request participants